Thursday, January 31, 2008
It was great to have an uninterupted night of sleep with my lovebug. I tossed and turned a bit. Colby's head growth is on my mind. I know he's getting surgery on Monday, but I just don't want any pressure prior to the surgury to do any damage. I don't know enough about the brain and all to understand if that's a real concern or not. I just wanted things to go as "normal" as they have been until Monday. But life rarely goes as planned.
I'll post some more pics later today.
Thank all of you for your continued interest in our story. It honestly makes a difference!
Wednesday, January 30, 2008
Colby is doing OK. It's funny sometimes how things seem to happen for a reason. Colby has surgery scheduled for this coming Monday. Thus far his head has been growing relatively slowly. But I've noticed his head getting bigger lately. Yesterday his head was just over 40 cm's. Tonight I measured it and it's up to 41 cm's. So we're going to keep an eye on it and if things progress, well need to call the neurosurrgeon.
That's about it really. We're going to crash early and get some rest. I'll post updates as we have any news.
Monday, January 28, 2008
Sunday, January 27, 2008
(Silly boy trying to blow bubbles)
(The "wingman" out cold with his hand stuck up in the air and his hat all messed up making the Colbster look like a cone head)
Saturday, January 26, 2008
He's doing very well. His belly has been hurting him again a bit on and off. When it's bothering him he's just cranky, poor guy.
Thank all of you for your e-mails and comments regarding his upcoming surgery. Time helps things feel a little better and it's sitting better with me now. We still haven't heard about a date. As soon as we do, I'll let everyone know.
His diaper rash is all but gone. That Triple Paste stuff worked great! He pooped on my yesterday right when I was putting it on his bum...yeah...good times! LOL
Tracey's working today, 6am to 2pm. So in about 1/2 hour I'm packing Colby's things and he and I are going to take a road trip to see Grandma and Grandpa over in Thomaston. It will be his first trip over that way. Hamilton has been enjoying a rather long stay at Grandpas. But we're missing him here so I'm going to bring him home too.
I'm also bringing the camera and hopefully will have some pics by tonight or tomorrow morning. I don't know why but I just haven't been much in the picture-taking mood. Probably just a rut and it'll change. : )
Friday, January 25, 2008
When we got out of that appointment we wandered down to the NICU to see some of our old friends. I simply can't say enough about the staff there. We saw some of his doctors and a couple of his nurses. Great to see them. I love socializing and I really got to know a lot of the folks there during our stay. I can say I honestly miss talking with them so it was wonderful to spend some time catching up. I also saw a couple of the parents who are still in the NICU. Their children are progressing along and it won't be long now until they too are home.
You loose perspective when you see your child every day and you just don't realize how much he's grown. We didn't go into the NICU rooms but stood just outside to visit and I could peer in and see the nurses holding current NICU babies. Boy did they seem tiny. It's amazing to think that our little Colby wasn't much bigger than my hand when he was first born! What a long way he's come!
We still don't have a date for Colby's operation. We're waiting anxiously for the doctor to call. All the doctors at UCONN asked about his hydrocephalus and we updated them regarding the recent change and the plan to have surgery. We felt reassured as all of them recognized the procedure that CCMC is going to try to do. They all said that it's a good alternative to the shunt if it works.
I got up about 12:30 when I heard that Colby was fussing and hungry. I'm now in the living room, Colby's fed and now in his swing looking all around as if it were the middle of the day. Ugghhhhhhhhhhhhh Go to sleep my child...... haha He's eating like a champ, usually taking an average of about 80 cc's each time he eats. He just took 100 cc's. You'd think "Hmmm, if he has a really full belly, maybe he's sleep longer, right?" Nope, not the Colbster. He's serious about eating and doesn't seem to want to wait much longer than 3 1/2 hours.
As we walked around UCONN, many nurses/doctors asked how old Colby was. Tracey knew his age right away but I had to think about it. While he was in the NICU it was all about his age. Now that he's home, I hardly think about it. On the 27th (this sunday) he'll be 5 months hold! Wow...almost 1/2 a year old my boy!! That's amazing to me! We're almost 1/2 way to his first birthday! I can't wait!
I'll probably sleep out here tonight. When we got home from the hospital I stayed up for maybe an hour at the most and then went into the bedroom and crashed. Tracey did the 9:30 feeding and then came to bed. But she's got to work at 6am today. So I'll stay out here to allow her some uninterrupted sleep. Then do this again tonight because she has to work Saturday morning, again at 6am. Then.....ow yes...then.....it's my turn to get some sleep!!!! YIPPIEEEE!!!!
So that's the scoop. I guess the tapping of my keyboard soothed Colby as he's fallen asleep. I need to do the same as it's now a countdown until he wakes up again. I'm home with him all day today so I'll probably update again. Happy Friday everyone!
Thursday, January 24, 2008
(Gettin' bigger. He's outgrown his preemie things and is now in 0-3. What a big boy!!!)
(Colby says "You're going to put that Triple Paste stuff where?!)
(On daddy's chest after a bottle.)
(Out cold at about 2am the other morning.)
Evan is out of High School, we can look for something a little closer. Most of my client base is in North Eastern CT, so we'll need to balance that. Tracey's family is also over this way. What about Colby's fans? Do you live close to family? Do you wish you did? Or maybe you have a "Everything Loves Raymond" thing happening and wish you were a little farther away. haha
Wednesday, January 23, 2008
I need to keep as busy as I can Monday-Thursday so Tracey brought him for the followup. She called me on my cell phone to let me know that the ultrasounds show that his hydrocephalus is getting worse. This hit me harder than I expected. I think it's because he's been home for a while now and I just want things to be "normal". I want the future to be "normal".
So, here we go again....
I just have spotty details as I was gathering information from Tracey over the phone as I wrapped up one appointment and headed to another. But as I understand it, the neurosurgeon is going to try to do a Third Ventriculostomy. They will go through the top of Colby's head with a camera, go down into his ventricle and make a hole in the bottom of the ventricle to drain the fluid. The doctor says that it doesn't always work and there are risks, but if it does work it's more of a "one and done". If upon going into his head they find it just doesn't look like it will work, they will put in a shunt.
Timing? It sounds like it will be within the next couple weeks. He's be admitted for a bit after his surgery.
That's about all the details I have thus far. I'm sorry that some of you who may be expecting an e-mail or phone call to let you know of this are finding out via the blog. But like I said this is hitting me harder than things in the past and I honestly don't feel like talking much. I need to save what spunk I still have as I need to give a presentation to a school board in about an hour. Isn't it funny how life just keeps pushing you sometimes.
I talked with Tracey about it and we're both of the same opinion..........although we don't want to be going through this, we just don't have a choice and we need to make the best of it all. And if it's what Colby needs, then it's what we need to do.
As I get more information, I'll update everyone.
Tuesday, January 22, 2008
I think Tracey and I might be into a groove with Colby at night. Last night I crashed around 9:30 and slept until 5am. Then I got up with him and will stay up until I leave for work. This lets me sleep through most of the night but then lets her sleep in the morning for a bit. I love getting up early....always have. I can get some work done, enjoy my coffee, watch some morning news, enjoy the quiet the house .....all before the sun comes up.
I don't know if any of Colby's followers watch the market, but it's been an interesting couple weeks. Now the international markets are starting to follow with fears that the US is teetering on a recession. Boring stuff to you? It's what I deal with every day and when the market acts like this...things get very busy! So I anticipate work getting busier again. I wonder if Colby will have an interest in the market as he gets older. Only time will tell.
So I'm doing my best now to continue to update the blog more regularly. I know that I'm still missing pictures. No excuses....I'll get some up soon.
I'll end with a couple of questions. Feel free to reply via a comment or shoot me an e-mail.
Do you follow the market much? And secondly, do you or did you ever hope your child would eventually do what you do for work?
Monday, January 21, 2008
So it's not that we don't want to see people (quite the opposite, I'm dying for some socialization!) and it's not that we don't want people to see him, it's just that we need to be so careful. If we were to say OK, come on over with your kids and just have them stay away from him and if anyone had a cold and didn't know it or the cold germs on them and Colby ended up getting sick....it just isn't worth it.
Anyway, I just wanted to explain why we're being so cautious.
Here's the link
Thank you for your understanding.
Saturday, January 19, 2008
Now onto better things....the Colbster! He's doing very well. Depending on what scale you believe, he's broken the 8 pound mark. I've seen improvement in his ability to keep his head up when we hold him. He has plenty of muscle to pull his head backwards, but it's bringing it forward that seems to challenge him the most. Nothing too new with his belly. We've been giving him some diluted pear juice every day and that's gotten things moving along. He continues to get up every 3 to 3 1/2 hours to eat. Although I'm finding that sometimes at night he eats less than during the day. I'll tell you, I love him and all, but he looses some of his charm once the sun goes down! Come 1am to about 5am, when I wake up to hear him screaming away and go in to change and feed him and NOTHING seems to sooth him....ow yeah......good times. I just bite my tongue and keep reminding myself this is all part of the deal. It's definitely worse when I'm really tired. But like I said...all part of the deal.
We've been sleeping in our room and putting him in his room. We can literally see his crib from the bed as it's right across the hallway. We can still hear his every little grunt and groan, but the 15 feet or so between us now helps Tracey and I get a little more rest. And like I said above, once he's up....we know about it!
He had an appointment to get a follow up ultrasound on his head this past Thursday. An assistant did the ultrasound and was going to have the doctor look at it. We haven't heard the results yet.
Colby had his first trip to my office yesterday. Fridays are my day to watch him. When he's sleeping, I'm able to get a lot of work done, either wrapping up paperwork from the prior days, doing research or catching up on e-mails. But yesterday I had to get into the office by the end of the day so I had to bring him. Everyone in the office was excited to see him. I unfortunately had to ask that people not touch him as we can't take the chance of anyone being sick and not yet knowing it. It was fun. I can't wait until summer when the cold/flu season is behind us, the weather is warmer and we can bring him for walks and all.
Tomorrow we're heading to Thomaston, CT. My hometown to see my mom and dad. They both want to see Colby. But Tracey and I also need some "Scott & Tracey time". So we'll let then watch Colby while Tracey and I blast downtown for a dinner. Boy are we looking forward to that!!!
I'm afraid I don't have any new pictures to post. I know you all keep asking that I keep them coming. I'll probably take a good amount tomorrow.
I just gave Colby a bath and then a bottle so he's out cold now. Tracey went to pick Evan up from his dad's and then is going grocery shopping. So I'm going to take advantage of a quiet house and relax for a bit. More updates tomorrow.
Tuesday, January 15, 2008
And keeping dad company in his office. He's a very big boy (Hamilton I mean)...probably about 11o pounds.
Monday, January 14, 2008
(Me keeping my boy warm this morning)
(LOL...socks on his little hands to keep them warm)
So I was all set up on the couch, laptop running, coffee in hand, Colby asleep in his cosleeper by the side of the couch. Then, just before 6am.....the power goes out. Here in New England, that happens from time to time. Depending on where you live, it can happen regularly in the winter. On the lake in Maine, it's a regular occurrence. Here in CT....not so often. But it happens.
But after about 45 minutes or so, I could feel the house starting to get cold. We don't have a wood burning fireplace. A couple years ago we bought a ventless fireplace that burns cans of fuel. Similar to what you see ...................CRAP.....the power JUST went out again!
It's amazing how much noise there must be and you just don't realize it when the power is on. Because as I sat here in the relative dark, I noticed just how quiet it was. All I could hear was the couple clocks we have that are battery powered ticking away and Colby breathing. I guess when the power is on you can also hear the refrigerator, the satellite TV receiver makes a humming sound and I don't know what else must make noise. Anyway, just something I noticed.
Although I'm a full service Financial Advisor, I focus on Connecticut Public School Teacher's and their spouses as they have a unique situation. They don't contribute to Social Security and they have their own pension system. I had three appointments today, one with a teacher in her school, one with a Board of Ed regarding new IRS guidelines about their plan and one tonight with a couple at their home. Given that schools are closed, the first two appointments are scrapped. I'd imagine that by this evening the roads will be fine and thus I'll keep my evening appointment.
Thank you all for your e-mails and comments with suggestions about what to include on the blog. I will certainly entertain some of those ideas!
Saturday, January 12, 2008
(ahhh, must have just been some gas)
(Chubby lil' boy!)
Friday, January 11, 2008
Welcome Cole and Camden.....If there were every two brothers that look like they stick together and watch each other's back....it's these two!!! I'm sure mom has stories that both support and contradict this thought. I think I see a mischievous look in their eye too. hehe
Although I like many baby names, the above baby's name I must say has a special place within me. This is Kendra's little Avery. She was born on November 20th when all of the sudden Kendra needed an emergency C-section. Kendra and her husband kept strong and made it though their unexpected turn in events and look at Avery now...happy and healthy. Kendra, thank you again for reaching out to us.
It's funny how sometimes friends from the past track you down again. Laura has been a friend of the family for years. My dad has kept in touch with her and her family. Rick, as you can see if the photo, is in Iraq. Yet with all that they have going on, they have cared enough to keep tabs on little Colby and that means a lot. Thank you so much for your support and for the photo! Very best wishes to you and Rick and once everyone is back stateside and in CT, we'll need to get together, let the dogs play and catch up a bit!
Hats off to Cynthia and Brian for raising these little cuties! From left to right, Brady, Alaina and Aaron. Yup...Brady and Aaron are twins!!! I'm sitting here with only one eye open from just one night being up to feed a singleton. Hats off to you guys for making it through the nights with twins! And by the looks of things, you've got difference of opinion withing the family...the girls liking the Red Sox and the boys rooting for the Yankees. That should make for some interesting times down the road. Keep up the good work! The family is adorable!!!
My best friend growing up was another Scott. His sister, Natalie and her husband, Will, now live out in TX and have these two beautiful children, Sophie and Griffin. Adorable little guys! Hmmm, if I recall correctly, their mommy and uncle knew how to have some fun in their teenage years and at times drove their mom nuts...so guess what Nat....What goes around comes around. haha...fun times ahead! haha
Mi Familia!!! Back in 1993-4 between High School and college, I spent a year in Chile, South America as an exchange student. I lived with just a wonderful Chilean family and had three brothers while I was down there. As families do, they've grown and now have children of their own. Above are pictures of mis sobrinos. Que lindos! I look forward to the day when Colby can meet his cousins and the uncles and grandparents can tell stories of when "El gringo" come to Chile! Mama, papa, Francisco, Rodrigo y Felipe, les echo de menos y ojala que nos veremos pronto!And let's round off this blog entry with a simply beautiful photo (if I do say so myself hehe) of the Johnson Family!!!! We see Chris and Liz and their daughters Chloe and Caitlin posing for their Xmas picture. What a good looking family! They live just around the block from us. Colby is looking forward hanging out with Caitlin....however I'll remember not to wear a new shirt when I hold her this time. haha
Thursday, January 10, 2008
Wednesday, January 9, 2008
(Our little Elvis)
(I'm not sure what this face is all about. Yesterday was a very warm day for Connecticut in January (about 60 degrees). So Tracey plopped Colby in his stroller for the first time and brought him out for his first cruise in front of the house.)(And yes...the ever-present Hamilton was there for Colby's maiden voyage. He's a good boy...just like his brother.)
I've been enjoying getting uninterrupted night's sleep as Tracey has been taking care of Colby at night. BUT...tonight is my last night. I have Colby-Care tomorrow and Friday night. Short in comparison to Tracey's last 4 days.....I know. But I do like my sleep. haha. She does so much better than I when she hasn't had sleep. She's a little snippy, as am I. But she can still talk and function. When I get really run down, don't ask me to talk or interact much or you'll be sorry. LOL