Sunday, February 17, 2008

Long overdue................

Sorry for not updating for so long. I've started to get some e-mails gingerly asking if everything is OK. And it is. : )
Colby is doing WONDERFULLY! He's a new little man ever since his surgery. He's 1,000 times more alert. He responds to our voices. He'll smile and giggle if you play with him. He’s so alert to the world around him. I can just imagine that it must be a huge relief for him not to have the pressure inside his head. And I can only imagine that it must have been affecting him from having his ventricles press against him brain. Either way, he’s doing just great and it's a night and day difference from prior to his surgery. He still has the white tape strips across his incision on his head. I'm not sure when those come off. But he's had no adverse side affects from his surgery ....... knock on wood. We feel very fortunate that he's had such a good result.
We're sometimes asked if this means he's "cured". The best answer is that it seems like he is for right now and we hope that will continue. We'll need to always watch for signs that his hydrocephalus has come back as the hole that the doctor made can get blocked and thus allow pressure to build up. But if that happens in a week or 10 years, then it's a week or 10 years longer that he could go without having any other interventions. And we certainly hope that he can go his whole life without any further signs of his hydrocephalus.
Birth to three came last week and said all in all he's doing pretty well. He can hold his head up and look around really well now if you hold him upright. It’s amazing to watch him develop. He still has trouble lifting his head while he's lying on his belly, but that will come. They said his legs felt stiff. The immediate concern is that it could be an early sign of cerebral palsy. But we honestly think that he was just being a little stinker and was fighting with therapist while she tried to move his legs because at other times, his legs are as limber as can be.
So why haven't I been updating? Honestly, because I needed a break. It's been a very long 7...or maybe even 8 months now. From the beginning, even prior to this blog, I started sending out daily e-mails. Then daily updates on the blog. Although in one sense it became addicting, on the other I just needed a break from the "so how's Colby today?".
Believe it or not, I haven't even been taking too many pictures. Tracey has become quite the photographer and I'll need to upload some of her pics and put them on the blog. Maybe tomorrow.... hehe


Anonymous said...

I am so happy that Colby is doing great!!!
Love, Mary and Hannah

Cynthia said...

glad to hear Colby is doing well!! Now that you've told us all that, don't feel badly for going a while between posts. God knows you deserve to spend all of your free time admiring your amazing son and being with your family! Although we WOULD like to see some of those pictures you spoke of :-)

Jamie, Jordan, and Maleia said...

So glad to hear that he is doing so well!!! That is amazing!!! We understand, you need to spend time with your family, and get some rest. Again we are happy to hear he is doing great!!!

Mommakitten said...

What a true blessing! I know how it is to have the constant "How is he/they doing?" When you have a "normal" baby born full term with no complications it seems that after those first few weeks, the baby only gets asked about in passing. But when you have one and in my case two micro-preemie babies who have been through more than some 85 year olds, it gets old when all other people care about is how your baby/babies are doing. Ask about me sometimes!!! When you are dealing with what we have been dealing with, you often forget to remember yourself. Don't get lost in your little blessing, but make sure if you do, let him loose himself in you too. God Bless.