Some more clips

Here's a couple of clips I took last night. As I've mentioned, we continue to work with Colby to try to get him to crawl or stand. The second clip shows Tracey working with him. Progress is slow, but we'll keep working.

Sunday mornings.....

(Colby out and about at a chocolate bar, enjoying somethings sweet while listening to some live music that was playing that night.)

(Colby visiting Aunt Brigette and Brian)

(Evan and Colby)

(Colby on mommy's back, trying out the new backpack. His hat is a little big on him, but it served to keep him warm)

(All packed into his new backpack. He couldn't really move around too much in it, but he didn't seem to mind at all.)

(Colby, Daddy and Hamilton all out for a hike)

(Daddy's turn to carry the Colbster)

(Colby and I went over our friend's Dave and Nicki's the other night. Here he's in his PJ's, all bundled up, a little past his bedtime, ready to head home and go to bed.)

(Colby in his flannel PJ's)

...are still my favorite.

Sitting here, enjoying my morning coffee. Colby is in his walker, eating Cheereos, watching Barney. He loves music and gets all excited when the kids sing.

I just can't seem to update this blog regularly now a days. I think life is getting busy. Lately I've felt the best I ever have about Colby's future. I think it's because he's started to mimic some words regularly. You can tell he's really thinking about things when you talk with him and he's babbling away.

One new thing he's into is mirrors. He's figured out that you can look in them at an angle and see new things. So he'll look into a mirror, lean one way, smile...then lean another way...smile again.

Our biggest hurdle continues to be his crawling and walking...or lack there of. We're trying to do exercises with him to get him crawling, but he wants nothing of it. I just figured out last night that I can prop him up in front of me, hold his legs straight with one hand and hold him up with the other. Then he has an exer-saucer that's just the right height to come up to his chest. So I had him playing with the things on the top of that last night and he FINALLY kept his knees locked and supported himself. I was so psyched and wanted to show Tracey, but she's working 3rd shift all this weekend so she was sleeping. Well Colby, guess you're just going to have to do it again today to show mommy. : )

Tracey and I have been wanting to get a backpack carrier to put Colby in. We've been looking on Criagslist and I finally pulled the trigger and got one yesterday. We took Colby for a little hike yesterday and both of us tried it on. We love it! It gives Colby a different perspective than being down in his stroller. It frees up our hands and give us a bit of a workout as well! The pictures below above are from the hike.

We've really been making it a point to have Colby wear his glasses just about all the time and it's making a difference with his right eye being turned in. He really doesn't mind wearing them either anymore. I think he can probably see better with them on so he may understand that it benefits him to keep them on.

I'm not sure how much Colby weighs now. He has a doctors appt in a couple weeks so we'll get an idea then. He's still small for his size, but catching up slowly.

I've been taking videos of Colby here and there. I love documenting his progress. Already I look back and can't believe both how small he was and how far he's come.

Been a while....

Wow, it's really been a while since I last posted anything and I apologize for that. Things have been very busy for us and I feel that although Colby is progressing, there's no monumental updates.
So...what about the Colbster? Well, he's consistently mimicking certain words. He'll repeat "mama" or "dada". I think he'll say "ball", though that's hit and miss. His new things is making the "ssssssss" sound. If you make that sound he'll laugh and then make it himself. He is one happy little guy. Just content to explore the world, interact with people and his surroundings.
He had his stitches removed from his latest surgery. He didn't cry a bit. Poor guy must be used to being poked and prodded. He still has some scabs on the top of his head, but they are quickly disappearing. We're anxious for his hair to grow in and help hide his latest incisions. Colby's head is a bit misshaped. The back right side is flattened from the prolonged time spent lying on his back. It just so happened that his head was turned to the right. While in the NICU, the opening to his incubator and then his crib was usually to the right of him. So by no body's fault, he had a tendency to keep his head turned to the right. Between that and his hydrocephalus, I think it might just be something that will be with him for his lifetime. He's still young though and I'm hoping that it will change.
He went to the eye doctor the other week. The doctor is a bit concerned that his eye continues to turn in. He suggests that we continue to use the glasses for another month or so. If that doesn't work, then they'll need to patch his good eye. And if that doesn't work....they'll try surgery. So we'll just have to wait and see. We've been trying to keep the glasses on him a lot more. He tolerates them well. It just happens that I didn't have him on during this video...but believe me...we're making him wear them a lot now!
I think Colby is looking more like a toddler than a little baby now. He's really grown a lot. When I look back at old pictures, I can't believe how small he was. I knew no better so to me, I understood he was a bit small.....but I really had no idea.
As I type this entry, Colby is falling asleep in his jumper. It's funny to watch because he'll gently bounce....then gradually go quite. His head is back against the head rest thing. Then he'll catch himself, almost as if to say "Wow...I can't fall asleep yet!" and start babbling and bouncing around.

Another quick video

Here's another video of the Colbster. He's just blossomed over the past couple weeks. I swear he knows when I have the camera on him because he'll stop talking or act all mellow. But I still got him babbling a bit here.

The more interactive he becomes the more attached I feel. It just melts my heart to see him react to my voice or if I ask "Where's momma" or "where's the doggie" and to see him look around for them. I think any parent can understand this feeling, but given all the question marks that the doctors gave us, it's all the more precious.

Some Quick Pics

(Colby and mommy having breakfast this morning)

(Colby looking up at his beautiful mommy)

Quick video

As you can see, Colby is becoming more verbal. He has his "spirts" of babbling...at times screaming. Either way, I think it's all cute! He's got the "d" sound down pat. He'll say da-da-da, but I'm not sure it's meant towards me. However if we say "where's da da" or "daddy", he'll look at me. If we say "where's momma" or "mommy", he'll look towards Tracey. We're pretty sure he understands "dog" as well as he'll look at Hamilton if we say that. So he continues to progress.
Colby is about 16 1/2 months old now. He still doesn't crawl. We continue to work on that and he's become more comfortable being on his belly. But he simply prefers to roll onto his back. He lacks the arm strength to push himself up. When he is on his belly and wants to get something in front of him, his arms and legs will go like crazy and he'll babble up a storm. So we're working on it.
His motor skills continue to improve. He's getting pretty good at manipulating things. He'll pick up small tidbits to eat with his two fingers. He'll transfer small and large items alike from one hand to another with ease.
Colby's right eye continues to turn in, at times pretty badly. We've been having him wear his glasses, but I have to admit we could be better. He's pretty tolerant of it and will wear them for long periods of time now.
As you can see the majority of his bandages on his head have either fallen off or come off with some assistance. He has stitches where his old shunt was and tape to hold his new incision closed. But that's it now.
So that's the scoop. Our little boy is on the slow and steady path to progressing and developing. We continue to have high hopes for our little guy.

Quick update

(Colby trying to impress the laides by looking tough at Starbucks)("So ladies...how do you take your bottle? Venti....soy....slighly heated...sippy cup? No problem...")("Um...excuse me....I'm on a date with two hot babes and I'd like to place an order before we discuss this very interesting book....apperently about feet")

(Colby and momma)

( My parents and their families have been so helpful. It's awesome to see my boy and my parents bonding. He totally recognizes them when they come into the room. Here's my mom with Colby about a week or so ago.)

(And here's my dad with Colby just yesterday.)

(Colby and I reading a book...both through glasses.)

Our little guy keeping warm by the fire.

Colby has been recovering very well from his latest shunt revisions. His stitches were itching a bit last week, but seem to be much better now. Apart from the tape, stitches and red marks on his head, there are no lasting signs of his latest ordeal.

We have enjoyed our holiday vacation and have gotten some rest. Tracey and I met up with Dave and Tracey, friends we hadn't seen in some years. They have twin girls just about the same age as Colby. We met in a Starbucks and enjoyed catching up and letting the kids do their thing. (see pictures above).

I took some video tonight of Colby babbling and in the next couple days will edit that and post it. But it's been a while since I last posted any updates so I wanted to get some pictures up here.

More to come.....