(you can silence the music by clicking on the little pause button on the right hand side of the blog)
I took a video this morning. You can see Colby having a couple seizures. They're just in his eyes and face. There's no rhyme or reason to when they happen. Though we do see that when he eats with a spoon, it happens every time he takes a bite. We're still in the process of getting transferred to Yale and we'll tell the neurosurgeon about that when we get there.
Tuesday took the wind out of our sails. But as the video shows, Colby is doing very well and we'll continue to work with him to help him continue to progress. Having PVL, a Brain Bleed or Hyrdrocephalus doesn't mean a child will have issues. Each one increases the likelyhood having something wrong. So the more things he has stacked against him, it's just the more we'll have to work to empower him to do all he can.
We had been going along the past couple months thinking we were in the clear and that all we had to do now was teach him, help him and empower him. So the thought of some new hurdles shocked us. But I thought back to when we first entered the hospital about a year ago and how our vision of having twins was suddenly rocked by our situation. But here we are just about a year later and all things considered, we're all doing very well. So the fact that Colby has some seizures and PVL is just something we'll deal with. Period. So let's move on.
Colby is a strong little boy. He's happy to be with us and we're so very happy to have him. That's what's most important.