"Daddy, I'm a big boy now...cause I'm four!"

(St Patty's day parade in Hartford with Grandma Carol)
(Driving daddy's boat. July 2011)
(At camp with Grandma Vikki and Grandpa Jud. July 2011)
(Fishin' with daddy at camp. July 2011)
(At camp with Grandpa Jud. July 2011)

(Of course....put the dinosaur on top of the lobster....makes complete sense!)


(Helping daddy cook. February 2011)
(Making snowmen with mommy. January 2011)
(Having fun with daddy at camp. July 2011)
(Pushing his running strolling while out for a run with mommy. August 2011)
(He and his friend Kaitlyn at his birthday party)
(Mommy, Kaitlyn and Colby. His 4th birthday party)


Yes, our little boy recently turned four years old. The past 9 months have been very good for Colby. He's had relatively few issues.
He loves his preschool and daycare. He's made some friends there. The kids seem to be drawn to him. Colby tends to be quiet, in the background watching and taking it all in. He'll often play contently by himself. This isn't to say that he's antisocial or doesn't play with other children, but more often than not, he'll start off on his own until he's more comfortable.
He's doing very well with his walking now. He gets around like a champ. He's very flat footed, which seems to cause issues with his balance. We may end up exploring some sort of brace to help correct this while he's still young. Balance and depth perception seem to be his main hurdles at this point. If he comes up to a line in the ground, it's almost as if he isn't sure if it's two levels or not and he'll often stop and slowly test the area beyond the line carefully before he proceeds. We have seen notable progress in his balance. He has inserts for his shoes that help correct his flat feet. It used to be night and day between when he had his shoes on and when he went barefoot or in sandles. His balance was always better with the shoes and the inserts.
Recently, Colby has started to become much better on stairs. He still goes very slowly and at times, needs to rest. But again, we see notable progress there as well.
When it comes to his vocabulary and ability to understand and process things, he's amazing! Friends, family and his teachers often comment on Colby's understanding of things. He often seems to understand much more than your "normal" 3 or 4 year old.
Some people have commented that he's like a little old man...both in what he says and in his mannerisms. LOL And we agree. He makes little grunting sounds sometimes when he gets up or picks something up. His gate is a little unique when he walks sometimes. We think it's cute.
Luckily, we haven't had any issues with his shunt in some time now! That's a wonderful thing! There's always the possibility that he will, at some point, no longer need the shunt. But the only way of knowing is for him to continue without any issues with pressure in his head and then we can only assume that things are working properly. He's very aware of his shunt and calls it his "spout" sometimes. We're not sure where he got this name for it but we chuckle when he refers to his "spout" and rubs the area on his head where it starts down to his belly.
On another positive note, he's Cyclic Vomiting Syndrome (CVS) seems to be getting better...or at least he's going through a very good spell lately. Now I write this blog as he's lying in bed having an episode. But he hasn't had one in over a month and now only throws up once every couple months. Sometimes we can see it in his eyes. He won't eat much and will be quiet. Sometimes he'll break out in a sweat and get restless and eventually fall asleep. But it's better than the spontaneous vomiting and passing out that he had at the beginning of his diagnosis.
Many people continue to ask us if he'll outgrow the CVS. Like his shunt, we just don't know. So we've learned to live with it and make the best of things the way they are. If either of the two issues become a thing of the past...well then things will just be that much better!
So now Colby is four years old! He got into preschool a year early and will repeat the year starting tomorrow morning. He's a happy, vibrant little boy. He continues to be a happy, easy going little boy.

Getting big!

Our little boy is growing up quickly. He's conquered walking. He'll say he's running, but for now it's a fast walk with his hands held a little ahead of himself. Sometimes he reminds me of a tall stick with something balanced on top. If you let the ball start tilting forward a bit, you need to quickly start moving in that direction to keep the stick under the ball. That's what happens when Colby runs. He likes to live life on the edge and is just of the cusp of letting his body get ahead of his feet. All along, he'll be talking...rambling sometimes about whatever is on his mind. Sometimes it's what happened that day, sometimes it's what mommy or daddy said. Or he'll count, sing a song or just hum a tune as he wanders aimlessly back and forth, down the hallway to his room, spinning around, then back to the living room only to pop his head in the doorway to say "Hey guys, whacha doin'?".
Preschool is going very well. He loves his friends and teachers. He goes from preschool to daycare and rides in a green van. He loves to tell us stories about the green van. We also know if he gets talked to in school because he'll tell on himself. "Mrs M said "Shhhhhhhh Colby....in da wibrawy today." Or "yeah...I cwied today at school." Then, just as quickly as that thought popped into his head, he's off on another story or off he goes on a mission to find his little toy train.
.
He hasn't had that many cyclic vomiting syndrome episodes. He'll go through periods (like a week or two) when he'll have a lot, then he'll go weeks without any or with just a few. We think the episodes are getting a little less severe. There are articles to say that kids can outgrow the syndrome. We hope that's the case.
He's old enough now to get the whole Santa concept and tells us that he needs to tell Santa to bring him toys. We decorated our tree the other day. He saw all the lights light up and he gasped "AWWWWWW!!!!! I see da wites!!!" He's loving the candy canes and is very excited to see if Santa brings him any toys. We'll have to wait and see. : )

Big steps!

So....what's new? Colby is walking! This video is a bit old now. I'll need to take more video as he's progressing so quickly. He took his first steps a couple weeks ago and hasn't turned back. He's been cruising for quite a while, so we knew it would only be a matter of time until he would be walking. It's amazing to see how quickly he's gaining confidence and strength! He still has trouble if he falls in the middle of a room because the only way he knows how to pull himself up is if he has something to hold onto. But he's working hard on that too. He has a "running" voice, or I should say breath. When we tell him to run, his little legs move a little quicker, but he breaths loudly and quickly, kind of like a dog panting. Then when he gets to wherever he was going, he'll let out a "phewwwwww".

Birth to Three is almost done as Colby turns 3 in a couple weeks. He got into the local preschool for two mornings a week which will be wonderful for him.

Apart from the walking, he continues to expand his vocabulary and develop his personality. He has a little sense of humor going. He's also starting to laugh at certain cartoons he watches which is really cute.

His cyclic vomiting syndrome has gotten better too. He still gets sick a couple times a month. There doesn't seem to be any rhyme or reason to it and his episodes don't last as long and aren't as intense as they used to be.

He's still wearing his glasses, though we've noticed that when he doesn't wear them, his eye isn't turning in as much. His glasses have been sat on, twisted, dropped, had all kinds of food smeared over them and right now seem to be holding together by a thread. So we'll need to set a new eye doctor's appt for him and see what's next.

So that's the scoop. I continue to look back at how far he's come. I just can't wait to see all the new things that he'll surprise us with.

Little Chatterbox

(Colby brushing daddy's hair)

(Ut ow...road rage at 2 and 1/2)

(Beep...beep...)

(Colby amazed and delighted when he found a leaf!)

Colby may not be walking...but boy is he talking!

His language skills are just taking off. It's so neat to see his personality really starting to come out as he can express himself with words now and at times repeat more than we would like him to. It melts me to hear his little voice call my name or call Tracey. He refers to us as "mommy" and "daddy", but every once in a while, he'll say "Twacy" or "Cots".....Tracey and Scott. He'll be in the car, I'll put Dave Matthews on and he'll say "Yeah daddy! Dave! I like it!". He'll also do his best to mimic some of the song lyrics. If he can't get the words, he'll hum the tune.

He is also becoming a bit of your typical two year old and now has a Time Out spot in the living room. He'll scoot himself over into his time out spot on his own sometimes and start talking to himself. "Colby....time out......let's talk.....no hitting...". After he's been in time out, Tracey will say "OK Colby,let's talk...why are you in time out.....". He puts his own accents and emphasis on different syllables and words sometimes that makes it all the cuter.

He's also doing pretty well with his counting. He can count rather consistently up to 7 now. He's working on his colors and usually does pretty well with Red, Green and Yellow.

His vomiting has mellowed out lately. He'll get sick maybe once every 3 weeks or so and the episodes seem to be a bit shorter than before. For a while it seemed like he was having about one a week. Some of the information we've read states that it can get better as the individual gets older. So that's what we've hoping for.

He is progressing with his walking. He still depends on one of us to put our hands out so he can hold on, but you can feel that he's much more stable, using our hands to correct himself much less often than before. He's also working on cruising around a table or anything else he can stand up next to. He's very unstable and unsure of himself. I think he's very capable of cruising more, but just lacks the confidence to move more freely.

He's due for another CAT scan to see how is ventricles are doing. Just a routine scan to give another benchmark and ensure things are the way they should be, though he shows no signs otherwise.

Colby is now 2 1/2. Birth to three has been seeing him ever since he come home. We now have a visit planned with the local preschool so that they can come and assess him to see if he will qualify to get into their program. I guess a child needs to be delayed in two or more areas. I think the only area that he is delayed is his gross motor skills as he's not walking. But i don't know enough about "normal" 2 1/2 behavior to really understand where he is. It's an odd situation because no parent wishes that their child has delays and needs special attention. But in Colby's case, we want him to have as much support, stimulation and care that he can get. So we really hope he gets into this program as it's right in the elementary school in town and has a great reputation. I guess they will come out in a couple weeks, take a look at him and I guess this will then determine if he'll qualify or not. We'll just have to wait and see.

He's not potty trained yet, though he'll tell us if he's going to the bathroom. We'll hear him tell us "I poopin" or "doin' pee-pee". So we'll need to tend to that pretty soon.

So I guess that's all the good news for now. We change the clocks this coming weekend and look forward to bringing him outside more. The cold and flu season will soon be behind us and we count our blessings that we made it through another winter relatively well.

I'll so what I can to try to take some video of him talking and put it up here before too long.

Pictures from Christmas

Colby's first two Christmases were spent in the hospital. It took three tries, but Colby's third Christmas was spent at home with family.

We started introducing the idea of Santa a couple months ago and he got to the point that he would recognize Santa's picture or say "Santa....coming.....ho, ho, ho". He doesn't quite get the concept of presents yet, but he still enjoyed his gifts once they were unwrapped.

Since the last update, Colby's vocabulary and verbal skills have continued to improve. He's a little chatterbox, repeating everything we say and coming up with some words from TV or other people. He's getting to the point that he'll say something and Tracey or I will ask "Did you teach him that?".

It's interesting because we will give him a toy, a car for example and say "drive". He will take the care and say "I driving, I driving". Or he got a toy cutting board with a fake knife and some plastic vegetables that break apart when you push the knife through them. I gave him the knife and said "Go ahead, cut them". He took the knife and said "I cutting...I cutting".

His biggest hurdle continues to be standing/walking. Though he continues to make slow, steady progress. He readily asks to walk. He need some help getting to his feet, but once standing, his little legs start stepping forward, at times without any thought of the position his upper body is in. Because of the way he sits on the floor (both legs in front of him,almost indian style with the soles of his feet facing each other), it makes it very hard for him to get up from the floor. He would need to rely on his arms to pull himself up and he just doesn't have the strength in his arms to do so yet. He got a play table for Christmas that's just the right height for him to grab on and pull himself up. So with some work, we're hoping this will really help him.

Tracey and I were talking the other day. We said that, among other things, next Christmas will bring Colby, 3 years old by then, probably running around the house, getting into everything. That's a problem we look forward to having.

Colby and Daddy walking

It's taken a long time, but Colby is finally asking us to walk. We'll help him up and hold his hands. His little legs get going and off he goes.

CVS, more than a drugstore

For the past couple months, Colby has been vomiting. At first it would be once a week, if that. Gradually, it become more frequent, sometimes 2 or 3 times a week. The fact that he was vomiting didn't alarm us. Our first thought was to make sure his shunt was working properly. And in each case, it was. The alarming part of these episodes was that after vomiting, Colby becomes extremely tired, sometimes a bit "out of it" and on a couple occasions, totally non-responsive to our trying to wake him. In between episodes, he's totally fine.

After some tests at the hospital and quite a bit of research on the internet, Colby is now being treated for something called Cyclical Vomiting Syndrome (CVS). He fits the description almost word for word: Periods of vomiting, followed by a tired, sometimes semi-conscious state. Often the person needs to lie in a quiet, dark room to make the symptoms subside. Episodes can be accompanied by migraine headaches and severe abdominal pain. Once the symptoms stop, the person often quickly returns to normal. The episodes are usually very predictable. Meaning that the person will feel it coming on and the symptoms will usually be the same each time. Timing between episodes can be as few as a couple days to as long as months. But once a pattern emerges, the person tends to continue to have episodes on or around the same schedule. People generally learn to cope with the syndrome. But for many, the biggest impact on the person's life is simply being sick and in bed during the episodes. A couple of things I read stated that most kids with CVS tend to miss quite a bit of school, with the average being a total of 5 weeks a year.

For Colby, his episodes seem to come every 5-6 days. Usually, it's just a day's worth of vomiting and wanting to be left alone in his crib and then he's back to his normal happy self.

As far as treatment. The cause of the syndrome is not well understood. Therefore, prevention and treatment is more of a trial and error than a clear cut approach to making the person better. Colby is currently taking an antihistamine. I don't fully understand how it works, but in some cases, this can help the symptoms. In about 60% of the cases, the person's symptoms lessen or mostly disappear during the late teenage years.

So, this is Colby's latest challenge. We really thought he was "in the clear". So now the idea of him having to deal with being so uncomfortable and sick just about weekly for possibly years to come is a bit of a blow to us. We're going to watch him closely to see how this med works and if there's no change, we'll keep searching for something that does.

Apart from this, Colby is doing great. He's a little parrot, repeating just about anything you say. He's starting to put a couple words together, but has a vocabulary of well over 100 words. He recognizes places a well. When we pull into our driveway, he'll say "home". When we pull into daycare, he'll say "kids!!" because we always ask him on the days he's going to daycare if he wants to go play with the kids. He's got manners too. If he burps he'll say " 'cuse me". He sings songs too. It's in his own little language, but sometimes if we're in the car, he'll start singing to a song. Or if we're home and he's playing with his guitar, he'll strum it and say "ooooooooooo soooooooooonnnnnnn sunnnnnnnnnnnnnnnnnnn ooooooooooooooooooo". It's too cute.

I've got to get him ready for daycare and myself ready to start my work week. But I wanted to put an update as it's been a while.